Hi Friends of JLK, Auntie has hacked the site again for Libby. She is getting Jennifer all settled in tonight so she didn’t have time to update but she wanted everyone to know that all is well and the port is in with no complications. Everything was pushed way back so they didn’t leave Packard […]
Perspective. We are waiting for jlks surgery to put her port in. It’s been bumped twice. Now behind 3 hours and counting. I was feeling sorry for myself… Mad that a day with our girl is being spent with her hungry/thirsty and scared watching movies at the hospital. Then I found out they are working […]
Not even sure what I want to write tonight…but I feel a need to reach out and write something. We told the kids the plan for the week before bed. That Daddy will be going to work tomorrow, the boys will be staying here with my parents and the girls will be going to the […]
We just received a check from the PayPal account from a list of all kinds of people. It was actually kind of fun to read it together and talk about how we know them. We will be using this gift for lodging and food while JLK gets her treatments. It removes a huge burden for us. […]
Sometimes this all feels like a dream, like this isn’t really our life and this isn’t really happening. She seems fine and healthy…Our daughter can’t be sick…I can’t actually lose her…can I? Then I see a group of teenagers and it hits me that I won’t ever know her like that. She won’t go to […]
One last thought before bed that I have to share. I don’t know if I adequately described the depth of our gratitude. I am sitting here crying tears I didn’t know existed in a time of such despair. Tears of my heart being filled up… It’s coming from all sides… from all angles and I […]
We are constantly overwhelmed with the outpouring of love and support both tangible and not. I am raw. Like an open wound constantly exposed to the elements. I don’t know how to express our gratitude since we are also staying so insulated with our family of 6. But please know we aren’t taking one single […]
6 years ago this was her due date. I thought that wait for her to be born into my arms would be the hardest time of our lives… I got to take the boys on Jonathan’s school field trip. We had a great time and I am glad I got to take them and spend […]
JLK went to school in the morning and Tony and I went to Target. I had one of those trips. All I wanted to buy was a video camera to capture her voice and her smile and her dancing and playing. We had about 20 minutes to get all the things we needed on our […]
We were lucky enough to have a dr free day today. We took advantage doing the simple things. Most importantly Daddy getting some one on one time with our girl and me getting time to go down a slide with her. She looked back and said thank you for going with me mommy. She is […]
